Other Organizations

Alliance for Humane Biotechnology – AHB is dedicated to raising popular awareness about the politics and social implications of genetic engineering. It is a grassroots effort by scholars, students, and activists to provide information to general audiences about little known biotechnological developments that are profoundly affecting us and future generations.

American Association of People with Disabilities – The AAPD is the country’s largest cross-disability membership organization, organizes the disability community to be a powerful voice for change – politically, economically, and socially.

American Civil Liberties Union (ACLU) – The ACLU works through the courts, legislatures and communities to defend and preserve the individual rights and liberties that the Constitution and laws of the United States guarantee.

Canadian Coalition for Genetic Fairness – Working to prevent genetic discrimination for all Canadians.

Center for Democracy and Technology – The Center for Democracy and Technology is a non-profit public interest organization working to keep the Internet open, innovative, and free. With expertise in law, technology, and policy, CDT seeks practical solutions to enhance free expression and privacy in communications technologies. CDT is dedicated to building consensus among all parties interested in the future of the Internet and other new communications media.

Center for Genetics and Society – The Center for Genetics and Society is a nonprofit information and public affairs organization working to encourage responsible uses and effective societal governance of the new human genetic and reproductive technologies. We work with a growing network of scientists, health professionals, civil society leaders, and others.

Coalition for Genetic Fairness – Founded in 1997 the CGF led the effort to successfully pass the Genetic Information Non-Discrimination Act in the United States.  It continues to bring together all parties to raise awareness of GINA and ensure strong regulation of its protections.

Consumers’ Union – Consumers Union, publisher of Consumer Reports, is an independent, nonprofit testing and information organization serving only consumers.

Consumer Watchdog – Consumer Watchdog (formerly The Foundation for Taxpayer and Consumer Rights [FTCR]) is a nationally recognized consumer group that has been fighting corrupt corporations and crooked politicians since 1985.

Council for Responsible Genetics– Founded in 1983, the CRG is the oldest bioethics organization in the United States.  CRG studies the social, ethical and environmental implications of biotechnology and represents the public interest on these important emerging issues.

Electronic Frontier Foundation – EFF confronts cutting-edge issues defending free-speech, privacy, innovation and consumer rights.

Electronic Privacy Information Center – EPIC is a public interest research center in Washington, D.C. It was established in 1994 to focus public attention on emerging civil liberties issues and to protect privacy, the First Amendment, and constitutional values.

Genetic Alliance – The Genetic Alliance (formerly The Alliance of Genetic Support Groups, Inc.), is an international coalition of individuals, professionals and genetic support organizations that is working together to enhance the lives of everyone impacted by genetic conditions.

The Genetics and Ethics Home Page – A clearing house for information on the social, ethical and policy issues associated with genetic and genomic knowledge and technology.

Genetics and Public Policy Center – The Center works to help policy leaders, decision makers, and the public better understand the rapidly evolving field of human genetics and its application to healthcare. Studying the human genome will lead to a clearer picture of the role of genetics in health and disease, which in turn will help drive the development of new diagnostic tools and treatments. But the same technologies raise a host of ethical, legal and social concerns. To inform genetic policy decisions, the Center surveys public attitudes about genetics issues, conducts analyses of the existing regulatory landscape, monitors the transition of genetic applications into clinical practice, and posits options and likely outcomes of key genetics policies.

GeneWatch UK – is an independent organization concerned with the ethics and risks of genetic engineering. It questions how, why and whether the use of genetic technologies should proceed and believes that the debate over genetic engineering is long overdue.

Georgetown University Health Policy Institute – HPI is a multi-disciplinary group of faculty and staff dedicated to conducting research on key issues in health policy and health services research.

The Indigenous Peoples Council on Biocolonialism – The IPCB is organized to assist indigenous peoples in the protection of their genetic resources, indigenous knowledge, cultural and human rights from the negative effects of biotechnology.

International Center for Technology Assessment – The International Center for Technology Assessment (CTA) is a non-profit, bi-partisan organization committed to providing the public with full assessments and analyses of technological impacts on society.

Leadership Conference on Civil Rights – The Leadership Conference on Civil and Human Rights is a coalition charged by its diverse membership of more than 200 national organizations to promote and protect the civil and human rights of all persons in the United States.

The National Breast Cancer Coalition – The National Breast Cancer Coalition is a grassroots advocacy organization dedicated to fighting breast cancer.

National Workrights Institute – The Institute’s goal is to improve the legal protection of human rights in the workplace.

Patient Privacy Rights – Patient Privacy Rights (PPR) works to empower individuals and prevent widespread discrimination based on health information using a grassroots, community organizing approach.  PPR educates consumers, champion smart policies and expose and hold industry and the government accountable.

Privacy International – For nearly twenty years Privacy International (PI) has vigorously defended personal privacy. They have campaigned across the world to protect people against intrusion by governments and corporations that seek to erode this fragile right.  PI is the oldest surviving privacy advocacy group in the world, and was the first organization to campaign at an international level on privacy issues.

Privacy Rights Clearinghouse – The Privacy Rights Clearinghouse (PRC) is a nonprofit consumer organization with a two-part mission — consumer information and consumer advocacy. It was established in 1992 and is based in San Diego, California.

Union of Concerned Scientists – UCS is an independent nonprofit alliance of 50,000 concerned citizens and scientists across the country that combines rigorous scientific analysis with innovative thinking and committed citizen advocacy to build a cleaner, healthier environment and a safer world.

World Privacy Forum – the World Privacy Forum focuses on conducting in-depth research, analysis, and consumer education in the area of privacy.